SynGAP10 weekly 10 minute updates on SYNGAP1 (video)

Happy Epilepsy Awareness Day! #S10E53

March 25, 2022

Three events to plan on:

  1. Jackie’s webinar on Severe Behaviors, Wednesday April 6th.  https://us02web.zoom.us/webinar/register/WN_5ojt2t3PSCWqGROpGaxVEw 
  2. Dr. Anderson’s webinar on Stem Cells, Thursday April 28th. https://us02web.zoom.us/webinar/register/WN_23J7Zy22R_-yDrz8RJHXHg 
  3. 2nd Annual #Sprint4Syngap is coming April 30, 2022, help us raise funds by starting a team and/or donating!  Sign up now: https://syngap.fund/sprint2022 

Here are the dates to think about for the rest of the year…

April 7-8

5th Dianalund International Conference on Epilepsy - Implementing Epilepsy Genetics in Clinical Practice

Denmark

April 30

Sprint for Syngap

Worldwide

May 13-15

EpiCon Convention

Nashville, TN

June 5 – 6

Epilepsy Foundation Pipeline Conference

Santa Clara, CA

June 11

Million Dollar Bike Ride

Philadelphia, PA

June 21

Splash for Syngap

Worldwide

June 23-25

2022 DSF Family & Professional Conference

Fort Worth, TX

June 25

Dr. Perry presenting exclusively to Syngap1 families

Fort Worth, TX

July 11-13

World Orphan Drug Congress

Boston, MA

September 26

Global Genes Patient Advocacy Summit

San Diego, CA

October 8

Scramble for Syngap

Travelers Rest, SC

October 8

2nd Annual Caren Leib Gala

New Jersey

Oct 31-Nov 1

Epilepsy Awareness Day Expo

Anaheim, CA

November 2

Epilepsy Awareness Day Disneyland

Anaheim, CA

November 12

Sparks of Hope

Atlanta, GA

November 29

Giving Tuesday

Worldwide

December 1

Scientific Meeting hosted by SRF

Nashville, TN

December 2-6

AES & the 4th Annual Synapse Roundtable

Nashville, TN

 

Thank you to #UFDTech for your fundraiser today, check it out: https://www.youtube.com/watch?v=Whkborgb-90 

This is a podcast: subscribe to and rate this 10 minute #podcast #SYNGAP10 here https://www.syngapresearchfund.org/syngap10-podcast 

Apple podcasts: https://podcasts.apple.com/us/podcast/syngap10-weekly-10-minute-updates-on-syngap1-video/id1560389818 

Episode 53 of #Syngap10 - March 25, 2022

#SYNGAP1 #Syngap #epilepsy #autism #intellectualdisability #id #anxiety #raredisease #epilepsyawareness #autismawareness #rarediseaseresearch #SynGAPResearchFund #CareAboutRare #PatientAdvocacy #GCchat #Neurology

 


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