SynGAP10 weekly 10 minute updates on SYNGAP1 (video)

F78.A1 is the ICD-10 code for 883 SynGAPians today! #UFDcure Cannonball in 5 days! Guest host, Ashley Frye

October 1, 2021

- Go see the SRF TikTok account: syngap.fund/tiktok

- Find us everywhere at our handle @curesyngap1.

- It's October 1! #SYNGAP1 ICD-10 code F78.A1 is live TODAY. Ask all your clinicians to start using it. syngap.fund/F78A1 

- Cannonball 5 DAYS . 3 dads driving across the US syngap.fund/cball #UFDcure.

- Consider donating to our fundraiser for RareBase syngap.fund/RB

- #SYNGAP Census! There are 883 diagnosed Syngapians worldwide. This is +75 in the last 3 months. Learn more at syngap.fund/census.

- Medical Considerations Guide is up! www.syngapresearchfund.org/families/doctors.  

- Oct. 23rd is the gala & auction in NJ. Dr. Ben Prosser and co-founder Ashley Evans will be speaking. syngap.fund/gala

- October Newsletter: read it here: syngapresearchfund.org/news.  

- Sign up for this 10 minute #podcast #SYNGAP10 here syngap.fund/10

This was Episode 29 of #Syngap10 - October 1st, 2021

#F78A1 #ICD10 #UFDcure #Syngap #epilepsy #autism #intellectualdisability #id #raredisease #epilepsyawareness #autismawareness #rarediseaseresearch #SynGAPResearchFund #CareAboutRare #PatientAdvocacy #GCchat #Neurology #Genetics #Pediatrics


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