SynGAP10 weekly 10 minute updates on SYNGAP1
 

SynGAP10 weekly 10 minute updates on SYNGAP1

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Over 1200 families are caring for a loved one with the rare disease ”SynGAP” resulting from a variant of the SYNGAP1 gene. This 10 minute weekly podcast is for them. A quick summary of the latest news in the space. The host is Mike Graglia, co-founder & managing director of the SynGAP Research Fund. SRF is a parent-led, all volunteer public charity in the US that strives to accelerate research into treatments for SYNGAP1 so that we can help our loved ones in a timeframe that matters. Learn more at https://www.syngapresearchfund.org/

Episodes

Time to fundraise for SYNGAP1 Research! Great info on Webinars, Blog, PRAX-222 & SynGAP Stories… #S10e94

Thursday Feb 23, 2023

Thursday Feb 23, 2023

We have a $20k match! 

- https://syngap.fund/rdd23 

- https://secure.givelively.org/donate/syngap-research-fund-incorporated/srf-rare-disease-day-2023

 

#Sprint4Syngap

- https://syngap.fund/sprint23 

- Main page https://secure.givelively.org/donate/syngap-research-fund-incorporated/sprint4syngap-2023 

- 13 Teams! Four already raising funds: Team Tavilla, Team Naya, Hope4Hadley, Team Lizzy.  Nine more ready to go.

- Bonfire Shirts: https://www.bonfire.com/sprint-for-syngap-2023/ 

 

Amazing Webinars

- Brain Surgery - Done https://www.syngapresearchfund.org/webinars/69-syngap1-and-epilepsy-surgery-is-it-time-to-consider-a-different-toolbox 

- Jeff Coller - mRNA - March 16th  https://www.syngapresearchfund.org/webinars/68-harnessing-messenger-rna-metabolism-for-the-development-of-precision-gene-therapy-syngap1 

- Jillian McKee - Date TDB - https://syngap.fund/mckee 

 

Killer Blogs on Free Genetic Testing

- Simons https://www.syngapresearchfund.org/post/136-support-simons-searchlight-2023-campaign-sign-up

- How to get testing https://www.syngapresearchfund.org/post/137-how-to-get-free-genetic-testing-for-people-with-autism-special-needs-epilepsy

- Why it matters https://www.syngapresearchfund.org/post/138-why-getting-a-genetic-diagnosis-matters-especially-for-syngap1

- List of things to do this year! https://www.syngapresearchfund.org/post/139-srf-attended-advanced-therapies-week-in-miami-when-will-you-go-to-a-conference-for-syngap1 

 

PRAX-222 Day!

- https://twitter.com/cureSYNGAP1/status/1628189201232699393

- https://clinicaltrials.gov/ct2/show/NCT05737784?term=seizures&cond=Epilepsy&sfpd_s=02%2F08%2F2023&sfpd_d=14&sel_rss=new14

 

Syngap Stories is on!

https://www.syngapresearchfund.org/syngap-stories 

 

Ciitizen is over 200! Update your Ciitizen Records
- Sign-IN https://app.ciitizen.com/ 

- Sign-UP https://ciitizen.com/syngap1 

 

This is a podcast: subscribe to and rate this 10 minute #podcast #SYNGAP10 here 

- https://www.syngapresearchfund.org/syngap10-podcast

Apple podcasts: 

https://podcasts.apple.com/us/podcast/syngap10-weekly-10-minute-updates-on-syngap1-video/id1560389818

Episode 94 of #Syngap10 - February 23,  2023 

#epilepsy #autism #intellectualdisability #id #anxiety #raredisease #epilepsyawareness #autismawareness #rarediseaseresearch #SynGAPResearchFund #CareAboutRare #PatientAdvocacy #GCchat #Neurology #GeneChat

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More on ENDD gift at Penn, but first, Finding SYNGAP1 Patients, Hotels & Grief in Florida - #S10e93

Monday Feb 13, 2023

Monday Feb 13, 2023

-Beacon - EEGs are critical for us. https://beacon.bio/

-Diagnosis: Heather

- Survey: https://syngap.fund/maybe

- Learn about this here: https://www.syngapresearchfund.org/post/probably-genetic-three-month-program-update - #CouldItBeSYNGAP1

- https://sparkforautism.org/

- #s10e91 - https://www.youtube.com/watch?v=JBQNGKiYQEE

- OUAG - Testing Poem -
Roses are red, Violets are blue
You gave a diagnosis of #ASD, But that's not really true. https://twitter.com/onceuponagene/status/1623714824332128261 

 

-Rare Disease Swarm - So many genes, moving so fast.

- Tweet: https://twitter.com/JMGraglia/status/1625007454244462595?s=20&t=DptFQ_8zFEZSc-FmeG2R7w

- Updated graphic: https://twitter.com/JMGraglia/status/1625013756714717184?s=20&t=DptFQ_8zFEZSc-FmeG2R7w

- Hotels are cool, start planning for a great weekend in December in Florida now… 

- Short Link: https://syngap.fund/2023conf 

- Long link https://docs.google.com/forms/d/e/1FAIpQLSfetAr8YH41nbJrJy1uXqJeS37nQD6khjDn-LiFxIWo5oUBjA/viewform 

 

-Grief: https://twitter.com/curesyngap1/status/1623934799009419265

 

- ENDD Webinar hosted by STXBP1

- Tweet: https://twitter.com/cureSYNGAP1/status/1624860304466415616

- Youtube: https://www.youtube.com/watch?v=uOcMAO4oVSE

- More links in Episode 92 #S10e92 https://www.youtube.com/watch?v=AYMx0SbQ1H8 

 

Ciitizen is over 200! Update your Ciitizen Records
- Sign-IN https://app.ciitizen.com/ 

- Sign-UP https://ciitizen.com/syngap1 

 

This is a podcast: subscribe to and rate this 10 minute #podcast #SYNGAP10 here 

- https://www.syngapresearchfund.org/syngap10-podcast

Apple podcasts: 

- https://podcasts.apple.com/us/podcast/syngap10-weekly-10-minute-updates-on-syngap1-video/id1560389818

Episode 93 of #Syngap10 - February 12,  2023 

#epilepsy #autism #intellectualdisability #id #anxiety #raredisease #epilepsyawareness #autismawareness #rarediseaseresearch #SynGAPResearchFund #CareAboutRare #PatientAdvocacy #GCchat #Neurology #GeneChat

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10 Reasons SYNGAP-land is hopeful & exciting today #S10e92

Wednesday Feb 08, 2023

Wednesday Feb 08, 2023

  1. Last week RegEl announced that their CNS Pipeline: Dravet, SCN2A & SYNGAP1 
    1. News https://twitter.com/cureSYNGAP1/status/1621293977579442177
    2. Follow her https://twitter.com/navneetkmatharu
    3. And him https://www.linkedin.com/in/jordane-dimidschstein-a1114852 
  2. Yesterday, Penn announced a $25m grant to the ENDD Program which is a dream team.
    1. Announcement: https://twitter.com/curesyngap1/status/1623000399300153344?s=46&t=GQBKtxA44lny0qsvNyEkAw 
    2. Prosser Webinar: https://www.syngapresearchfund.org/webinars/targeting-alternative-splicing-of-syngap1-using-antisense-oligonucleotides
    3. Heller Webinar: https://www.syngapresearchfund.org/webinars/dr-elizabeth-heller-phd-upenn-understanding-syngap1 
  3. Ingo updated his famous gene timeline chart and included SYNGAP1 - we are on the map https://twitter.com/ingohelbig/status/1615693871769321472?s=46&t=XfQ6xkKY7cQaFZnRTbaSNw 
  4. Praxis had an earnings call, and it looks like they will have a big year and enough cash to get to next year.  https://investors.praxismedicines.com/news-releases/news-release-details/praxis-precision-medicines-provides-corporate-update-and-7 
  5. We have a new podcast!  Yes, SRF was one of the first to create its own podcast and now we have two. https://www.syngapresearchfund.org/syngap-stories
  6. Grants are due on March 1 and we already have a few! https://www.syngapresearchfund.org/post/134-apply-for-syngap1-research-grants-by-march-1st-or-september-1st 
  7. Rare Disease Day is end of month https://www.syngapresearchfund.org/post/133-what-is-rare-disease-day-why-is-it-the-last-day-in-february-syngap1
  8. Three ways to raise money!
    1. We have a match for all donations this month up to $20k, donate! https://secure.givelively.org/donate/syngap-research-fund-incorporated/srf-rare-disease-day-2023
    2. Sprint for Syngap: https://secure.givelively.org/donate/syngap-research-fund-incorporated/sprint4syngap-2023 
    3. MDBR: https://secure.givelively.org/donate/syngap-research-fund-incorporated/srf-million-dollar-bike-ride-mdbr-2023-for-syngap1 
  9. We have a clinical trials page. Check it out. https://www.syngapresearchfund.org/families/resources/clinical-trials 
  10. Many other signs of progress
    1. RSRT Gene Therapy Announcement. https://twitter.com/cnsdrughunter/status/1617522729900707840?s=46&t=XW7hz9hgm6v3IAOPAmS_Kg
    2. Rare Revolution Magazine on Siblings. https://rarerevolutionmagazine.com/rare-reports/ 
    3. Poison Exon Dance from the Carvill Lab. https://www.youtube.com/watch?v=jV3Ne0nmmNU 

 

Ciitizen is over 200! Update your Ciitizen Records
- Sign-IN https://app.ciitizen.com/ 

- Sign-UP https://ciitizen.com/syngap1 

 

This is a podcast: subscribe to and rate this 10 minute #podcast #SYNGAP10 here

- https://www.syngapresearchfund.org/syngap10-podcast

Apple podcasts: 

- https://podcasts.apple.com/us/podcast/syngap10-weekly-10-minute-updates-on-syngap1-video/id1560389818

Episode 92 of #Syngap10 - February 8,  2023 

#epilepsy #autism #intellectualdisability #id #anxiety #raredisease #epilepsyawareness #autismawareness #rarediseaseresearch #SynGAPResearchFund #CareAboutRare #PatientAdvocacy #GCchat #Neurology #GeneChat

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Why we need to keep talking about SYNGAP1 #S10e91

Tuesday Jan 31, 2023

Tuesday Jan 31, 2023

Press is good! 
- Short link: https://syngap.fund/nw

- Long link: https://www.newsweek.com/my-son-syngap1-rare-genetic-condition-1776362

Jo Ashline in Invitae:
https://blog.invitae.com/finding-andrews-truth-a-family-s-unexpected-rare-disease-diagnosis-e21e97da6baf

 

Episode 90 was good, remember to listen, #S10e90 https://www.youtube.com/watch?v=Mp4jHg-GXjE

 

Ciitizen is over 200! Update your Ciitizen Records
- Sign-IN https://app.ciitizen.com/ 

- Sign-UP https://ciitizen.com/syngap1 

 

Conference Videos are up from Science Day!

https://www.syngapresearchfund.org/post/2022-syngap1-conference-roundtable

Grant applications due March 1, 2023

https://www.syngapresearchfund.org/professionals/grants/how-to-apply

Priority Areas:
 - Biomarkers & Endpoints

 - VUS Resolution
 - Characterizing SYNGAP1 patients in the literature

 - SYNGAP1 Translational Science

Help Research with this brief survey.  Tell a friend and share these links - 200 & counting, $50 each. 

- Short link: https://syngap.fund/UCSF_survey

- Long link: fd91u8h6784.typeform.com/to/cvMzzG9z?utm_source=advocacy_org&utm_medium=email&utm_campaign=predictive_tool_survey&utm_term=syngap_research_fund

 

This is a podcast: subscribe to and rate this 10 minute #podcast #SYNGAP10 here 

- https://www.syngapresearchfund.org/syngap10-podcast

Apple podcasts: 

- https://podcasts.apple.com/us/podcast/syngap10-weekly-10-minute-updates-on-syngap1-video/id1560389818

Episode 91 of #Syngap10 - January 31,  2023 

#epilepsy #autism #intellectualdisability #id #anxiety #raredisease #epilepsyawareness #autismawareness #rarediseaseresearch #SynGAPResearchFund #CareAboutRare #PatientAdvocacy #GCchat #Neurology #GeneChat

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Seven Ways to advance SYNGAP1 Research this week. Post video, take survey, tell us your opinion on Rare-X/Simons, Update Ciitizen, #SRFWW, JR’s book, Plan. #S10e90

Saturday Jan 21, 2023

Saturday Jan 21, 2023

Seven Ways to help:

- Post a video with a seizure

- Take a 10 minute survey

- Tell us how you feel about Simons and Rare-X

- Signup for or Update Ciitizen

- Signup for or share a Wednesday Warrior

- Buy JR’s book and give it to someone

- Plan your fundraiser this year

 

Videos of kids with seizures.  #SYNGAPseizure

#biomarker

 

Help Research with this brief survey.  Tell a friend and share these links - 150 & counting, $50 each. 

- Short link: https://syngap.fund/UCSF_survey

- Long link: fd91u8h6784.typeform.com/to/cvMzzG9z?utm_source=advocacy_org&utm_medium=email&utm_campaign=predictive_tool_survey&utm_term=syngap_research_fund

 

Simons and Rare-X - What do you think?

- https://syngap1.rare-x.org/

- https://www.simonssearchlight.org/research/what-we-study/syngap1/ 

 

Update your Ciitizen Records
- Sign-IN https://app.ciitizen.com/ 

- Sign-UP https://ciitizen.com/syngap1 

 

Another special Wednesday Warrior, please read - 17 year old

- https://www.syngapresearchfund.org/syngap-warrior/eli-2 

- https://www.syngapresearchfund.org/get-involved/advocacy/share-your-story

 

JR WEBINAR - MORE OF EVERYTHING - BOOK

- Recording Available - https://syngap.fund/jr
- Buy the book: https://www.amazon.com/More-Everything-extreme-special-emotional-ebook/dp/B0BQ2C7HNL 

 

Congrats to the Stromgaard Lab on a big award.

- https://twitter.com/cureSYNGAP1/status/1614948835067068416?s=20&t=KxO5w7Fk9MuOvc6wHyUWUw

 

Thank you to Ingo for updating your graphic on genes

- https://twitter.com/ingohelbig/status/1615693871769321472?s=46&t=XfQ6xkKY7cQaFZnRTbaSNw

 

This is a podcast: subscribe to and rate this 10 minute #podcast #SYNGAP10 here 

- https://www.syngapresearchfund.org/syngap10-podcast

Apple podcasts: 

- https://podcasts.apple.com/us/podcast/syngap10-weekly-10-minute-updates-on-syngap1-video/id1560389818

Episode 90 of #Syngap10 - January 21,  2023 

#epilepsy #autism #intellectualdisability #id #anxiety #raredisease #epilepsyawareness #autismawareness #rarediseaseresearch #SynGAPResearchFund #CareAboutRare #PatientAdvocacy #GCchat #Neurology

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JR’s book, ORCA & RareX, Data talks, Update Ciitizen, Syndrome Management, ASOs for the Brain, Libby & Espy #S10e89

Sunday Jan 15, 2023

Sunday Jan 15, 2023

JR’s book, ORCA & RareX, Data talks, Update Ciitizen, Syndrome Management, ASOs for the Brain, Libby & Espy #S10e89

 

JR WEBINAR - MORE OF EVERYTHING - BOOK

 - Thursday January 17, 2023 - https://syngap.fund/jr
 - Direct link: https://us02web.zoom.us/webinar/register/WN_EMzPKDWiRluBMmslT0wpdA 

 

ORCA Progress and Rare-X - Sign up now and if signed up, take the ORCA.

 - Login/Signup for Rare-X https://syngap1.rare-x.org/

 - Take the ORCA

 

Ingo’s CNS talk shows us what is possible with Ciitizen Data, other data.  And how distinct SYNGAP1 is…

 

Update your Ciitizen Records
 - Sign-IN https://app.ciitizen.com/ 

 - Sign-UP https://ciitizen.com/syngap1 

 

All about Syndrome Management, let’s get beyond seizures.

https://twitter.com/CNSdrughunter/status/1612863006148366356 

 

PRAX-222 is number 3.  So exciting.  To see ASOs go into the Brain.

  1. Stoke with #SCN1A
  2. Ultragenyx with Angelman Syndrome
  3. Praxis with #SCN2A via #PRAX222
  4. Who will 4 be?  Will it be #CDKL5?  #STXBP1? SYNGAP1?

 

Very special Wednesday Warrior, please read - 19 year olds

https://twitter.com/cureSYNGAP1/status/1613263197930422272

 

Ellen’s Dx Journey - 40 year old

https://www.syngapresearchfund.org/post/131-is-it-genetic-my-40-year-journey-of-misdiagnoses-for-my-son 

 

This is a podcast: subscribe to and rate this 10 minute #podcast #SYNGAP10 here https://www.syngapresearchfund.org/syngap10-podcast

Apple podcasts: https://podcasts.apple.com/us/podcast/syngap10-weekly-10-minute-updates-on-syngap1-video/id1560389818

Episode 89 of #Syngap10 - January 14,  2023 

#epilepsy #autism #intellectualdisability #id #anxiety #raredisease #epilepsyawareness #autismawareness #rarediseaseresearch #SynGAPResearchFund #CareAboutRare #PatientAdvocacy #GCchat #Neurology

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New Grant, Rare Affair, SYNGAP1 research and events #S10e88

Tuesday Jan 10, 2023

Tuesday Jan 10, 2023

NEW GRANT - Cobb & Kind #AAV Grant by SRF US & UK

LinkedIn https://www.linkedin.com/feed/update/urn:li:activity:7016828620451053568 

Twitter https://twitter.com/cureSYNGAP1/status/1611059709301362688 

Facebook https://www.facebook.com/cureSYNGAP1/posts/pfbid02McP84y7CP3FuGVS9huTGmP7A5NBGr6AQn26pYih1y3WptpVuDkRD118V65NpMQrWl 

Announcement https://www.syngapresearchfund.org/post/pr-14-syngap-research-fund-u-s-and-syngap-research-fund-uk-award-grant-to-the-university-of-edinburgh-medical-schools-patrick-wild-centre-centre-for-discovery-brain-sciences 

 

#RAREAFFAIR #JPM23 WAS AWESOME - KAKIS FOCUSED ON BIOMARKERS

https://www.linkedin.com/in/allyson-berent-36621523/ 

Saving Ryan - 

 

#BIOMARKER - BIOLOGICAL AND DIGITAL ARE NEEDED

https://www.linkedin.com/posts/graglia_jpm2023-precisionmedicine-biotech-activity-7018331014909353984-NLLL  

 

GLOBAL #RAREBEARS FOR A KIDDO NEAR YEAR YOU

https://www.rarescience.org/rare-science-partner/syngap1-research-fund/ 

 

#SYNGAP1 in BEYOND THE ION CHANNEL

https://twitter.com/cureSYNGAP1/status/1611459555250311171 http://epilepsygenetics.net/2023/01/06/syngap1-three-things-to-know-in-2023/ 

 

#HELLERLAB FUNDED BY #MDBR FOR ANOTHER YEAR

https://twitter.com/eahellerphd/status/1611414154946183169
#S10e14 https://www.youtube.com/watch?v=VpNJqjL0I-w 

 

#NOSPHARMA HAS #SYNGAP ON THE PIPELINE 

https://www.linkedin.com/posts/anmolsnagpal_nospharma-innovating-treatments-for-rare-activity-7017271522109083648-Oeip/ 

See #S10e75 https://www.youtube.com/watch?v=lWFLyqLLVQQ  

 

This is a podcast: subscribe to and rate this 10 minute #podcast #SYNGAP10 here https://www.syngapresearchfund.org/syngap10-podcast

Apple podcasts: https://podcasts.apple.com/us/podcast/syngap10-weekly-10-minute-updates-on-syngap1-video/id1560389818

 

Episode 88 of #Syngap10 - January 10,  2023 

#epilepsy #autism #intellectualdisability #id #anxiety #raredisease #epilepsyawareness #autismawareness #rarediseaseresearch #SynGAPResearchFund #CareAboutRare #PatientAdvocacy #GCchat #Neurology

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SRF 2022 Numbers, Great Press, a wonderful wedding. #S10e87

Wednesday Jan 04, 2023

Wednesday Jan 04, 2023

SRF BY THE NUMBERS IN 2022

 

GREAT PRESS

Diagnosis of a 40 year old #SYNGAPian

 

Inside Precision Medicine Profile

 

DNAtoday Podcast

 

DEANNA IS AMAZING

 

 

This is a podcast: subscribe to and rate this 10 minute #podcast #SYNGAP10 here https://www.syngapresearchfund.org/syngap10-podcast

Apple podcasts: https://podcasts.apple.com/us/podcast/syngap10-weekly-10-minute-updates-on-syngap1-video/id1560389818

Episode 87 of #Syngap10 - January 4,  2023 

#Syngap #SYNGAP1 #epilepsy #autism #intellectualdisability #id #anxiety #raredisease #epilepsyawareness #autismawareness #rarediseaseresearch #SynGAPResearchFund #CareAboutRare #PatientAdvocacy #GCchat #Neurology

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#SYNGAPconf22 was a hit, join us in 2023… #S10e86

Thursday Dec 29, 2022

Thursday Dec 29, 2022

PRE-REGISTER FOR NEXT YEAR

https://twitter.com/cureSYNGAP1/status/1608462863819067397

https://docs.google.com/forms/d/e/1FAIpQLSfetAr8YH41nbJrJy1uXqJeS37nQD6khjDn-LiFxIWo5oUBjA/viewform 

 

Buy this book on Amazon or on JR’s website - #MoreOfEverthing by JR

https://janiereade.com/
https://www.amazon.com/More-Everything-extreme-special-emotional-ebook/dp/B0BQ2C7HNL 

 

JACKIE KANCIR STORY

https://www.facebook.com/cureSYNGAP1/posts/pfbid0gTTnF77VdbTirweTyKqKxHzDkNz66jUxxnvwMzjUxzwzFU1Q1U4HYrDywFMoBeAkl

https://twitter.com/cureSYNGAP1/status/1608216895240671232?s=20&t=INvuB36y5oJM-bL_RKtscg

https://www.linkedin.com/feed/update/urn:li:activity:7013986280099250177

 

CIITIZEN DATA BY CHOP

https://twitter.com/JillianLMcKee/status/1600202742269501442  

 

SIGN UP FOR CIITIZEN

ciitizen.com/syngap1

 

SCIENCE DAY AGENDA
https://twitter.com/sandysmith317/status/1598322472037801984 

 

FAMILY DAY AGENDA

8:30 AM SYNGAP1 CAREGIVERS: REALITY, RESILIENCE AND RESOURCES - Becky 10:45 AM REGISTRIES - Invitae, Simons, Rare-X w/Q&A

12:15 PM GETTING CLINICAL TRIAL READY - Kathie Bishop, Acadia

1:15 PM PRAXIS

1:40 PM TAKING ON BEHAVIORS - Jackie Kancir, SYNGAP1 Mom & Advocate

2:30 PM MORE OF EVERYTHING BOOK LAUNCH - Janie Reade, SYNGAP1 Mom & Author

3:20 PM SRF LATIN AMERICA - FONDO DE INVESTIGATION SYNGAP - Vicky

3:45 PM SRF YEAR IN REVIEW - Rebecca, Peter, Pavel

4:30 PM LOOKING TO THE FUTURE - Mike

6:30 PM COMMUNITY DINNER

 

This is a podcast: subscribe to and rate this 10 minute #podcast #SYNGAP10 here https://www.syngapresearchfund.org/syngap10-podcast

Apple podcasts: https://podcasts.apple.com/us/podcast/syngap10-weekly-10-minute-updates-on-syngap1-video/id1560389818

Episode 86 of #Syngap10 - December 29,  2022 

#Syngap #SYNGAP1 #epilepsy #autism #intellectualdisability #id #anxiety #raredisease #epilepsyawareness #autismawareness #rarediseaseresearch #SynGAPResearchFund #CareAboutRare #PatientAdvocacy #GCchat #Neurology

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#AES2022 clearly showed us that SRF & SYNGAP1 have arrived… #S10e85

Thursday Dec 29, 2022

Thursday Dec 29, 2022

#AES2022 clearly showed us that SRF & SYNGAP1 have arrived… #S10e85

 

Dr. Grinspan on AES

https://www.neurologylive.com/view/partnering-clinicians-parents-motivator-pediatric-epilepsy-research-zachary-grinspan

Ana Mingorance on SYNGAP1 and #EscapeVelocity https://www.draccon.com/dracaena-report/aes2022 

 

Dr. Dennis Lal on AES & Genetics
https://twitter.com/LalDennis/status/1600617199110070286

Mike’s Talk at AES
https://twitter.com/LouisTDang/status/1598753675714887684

https://twitter.com/IDreamofGenes/status/1598753872172191745

https://twitter.com/john_oldenhof/status/1598756993073717249


CAMP4 Poster by Ali Al Abdullatif, MsC
https://twitter.com/camp4tx/status/1601222388317917186

This is a podcast: subscribe to and rate this 10 minute #podcast #SYNGAP10 here https://www.syngapresearchfund.org/syngap10-podcast

Apple podcasts: https://podcasts.apple.com/us/podcast/syngap10-weekly-10-minute-updates-on-syngap1-video/id1560389818

Episode 85 of #Syngap10 - December 29,  2022 

#Syngap #SYNGAP1 #epilepsy #autism #intellectualdisability #id #anxiety #raredisease #epilepsyawareness #autismawareness #rarediseaseresearch #SynGAPResearchFund #CareAboutRare #PatientAdvocacy #GCchat #Neurology

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