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Over 1200 families are caring for a loved one with the rare disease ”SynGAP” resulting from a variant of the SYNGAP1 gene. This 10 minute weekly podcast is for them. A quick summary of the latest news in the space. The host is Mike Graglia, co-founder & managing director of the SynGAP Research Fund. SRF is a parent-led, all volunteer public charity in the US that strives to accelerate research into treatments for SYNGAP1 so that we can help our loved ones in a timeframe that matters. Learn more at https://www.syngapresearchfund.org/
Episodes
Friday May 19, 2023
Friday May 19, 2023
Email ENDD@chop.edu to sign up, please cc mike@curesyngap1.org
Email ENDD@chop.edu to sign up, please cc mike@curesyngap1.org
Email ENDD@chop.edu to sign up, please cc mike@curesyngap1.org
Email ENDD@chop.edu to sign up, please cc mike@curesyngap1.org
Email ENDD@chop.edu to sign up, please cc mike@curesyngap1.org
This is the ENDD of excuses. Sign up for the CHOP ENDD Study.
There is so much work to do, volunteer Info@SyngapResearchFund.org
This is a podcast: subscribe to and rate this 10 minute #podcast #SYNGAP10 here
- https://www.syngapresearchfund.org/syngap10-podcast
Apple podcasts:
Episode 105 of #Syngap10 - May 19, 2023
#biomarkers #epilepsy #autism #intellectualdisability #id #anxiety #raredisease #epilepsyawareness #autismawareness #rarediseaseresearch #SynGAPResearchFund #CareAboutRare #PatientAdvocacy #GCchat #Neurology #GeneChat
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