SynGAP10 weekly 10 minute updates on SYNGAP1 (video)

Webinars,  Mugs, Blog, GCs, Ciitizen, Cure, OUAG, CTR

August 13, 2021

Episode 22 of #Syngap10 - August 13th, 2021

- Webinars

     -https://Syngap.fund/eduardo  August 19 at 10 am PST

     -https://Syngap.fund/ana  Sept 2 at 10 am PST

- Mugs mugs mugs

     -https://twitter.com/AAledo/status/1426207246149636099 

- Blog: Genetics article is a must read for new families 

     - https://www.syngapresearchfund.org/post/what-should-i-ask-in-my-genetics-appointment-for-syngap1 

- Genetic Counselors

     - Tell me about your experience

     - What do they need to know?

     - Hug them

- Ciitizen

     - Count 110 + 12, let's keep going, 28 spots left!

     - Panel https://www.facebook.com/cureSYNGAP1/videos/221755526409431/

     - Sign up https://ciitizen.com/syngap1 

- Cure

     - Rarebase article https://www.rarebase.org/post/what-does-it-mean-to-find-a-cure-for-a-disease 

     - See episode 19. Yes, we need to reach for this

     - We may not know what is coming, but we need to work for it

 

- One Upon a Gene

     - 94 https://effieparks.com/podcast/episode-094-mike-and-nasha 

     - 41 https://effieparks.com/podcast/episode-41-syngap-research-fund

- Cures go through clinical trials. Get ready: https://syngap.fund/ctr - $36k!


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