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Over 1200 families are caring for a loved one with the rare disease ”SynGAP” resulting from a variant of the SYNGAP1 gene. This 10 minute weekly podcast is for them. A quick summary of the latest news in the space. The host is Mike Graglia, co-founder & managing director of the SynGAP Research Fund. SRF is a parent-led, all volunteer public charity in the US that strives to accelerate research into treatments for SYNGAP1 so that we can help our loved ones in a timeframe that matters. Learn more at https://www.syngapresearchfund.org/
Episodes
Monday Aug 02, 2021
Monday Aug 02, 2021
#SYNGAP10 - Episode 21 - August 2, 2021 - Connection is everything!
-Thank you for all the connections this week!
-San Diego with the Harding Family
-https://www.facebook.com/groups/SyngapResearchFund/posts/810210336527359
-New Jersey with Nancy Lieb Kessler
-https://www.thesandpaper.net/articles/genetic-testing-solves-a-familys-medical-mystery/
-Ashley in Boston
-https://twitter.com/SYNGAP1mom/status/1420457356836495360
-Juan and Vicky did a wonderful video!
-https://www.youtube.com/watch?v=T_W_3IuJCrI
-Support our current effort at https://syngap.fund/CTR
-Subscribe to this podcast at https://syngap.fund/10
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