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Over 1200 families are caring for a loved one with the rare disease ”SynGAP” resulting from a variant of the SYNGAP1 gene. This 10 minute weekly podcast is for them. A quick summary of the latest news in the space. The host is Mike Graglia, co-founder & managing director of the SynGAP Research Fund. SRF is a parent-led, all volunteer public charity in the US that strives to accelerate research into treatments for SYNGAP1 so that we can help our loved ones in a timeframe that matters. Learn more at https://www.syngapresearchfund.org/
Episodes
Friday Jul 23, 2021
Friday Jul 23, 2021
#SYNGAP10 - Episode 20 - July 23, 2021 - Great things afoot! Join us.
- Thank you to you know who you are, & welcome to three new families this week!
- https://syngap.fund/CTR is happening, worked on data this week
- https://ciitizen.com/SYNGAP1 sign up, we are filling cohort 3!
- Next grant on drug discovery is already in the works
- A few announcements
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- Wed July 28 - San Diego, see you next week
- Sunday August 1 - Gathering in Jersey
- Tuesday August 24 - UC Davis meet the researchers
- Interested in getting a service dog? https://www.meridusk9.com
- Make sure you track us on social: @cureSYNGAP1 on all platforms
- Look for a cool podcast on August 5th with Mike & Nasha, be sure to follow OUAG: https://effieparks.com/podcast
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