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Over 1200 families are caring for a loved one with the rare disease ”SynGAP” resulting from a variant of the SYNGAP1 gene. This 10 minute weekly podcast is for them. A quick summary of the latest news in the space. The host is Mike Graglia, co-founder & managing director of the SynGAP Research Fund. SRF is a parent-led, all volunteer public charity in the US that strives to accelerate research into treatments for SYNGAP1 so that we can help our loved ones in a timeframe that matters. Learn more at https://www.syngapresearchfund.org/
Episodes
Friday Jun 25, 2021
Friday Jun 25, 2021
#SYNGAP10 - Episode 16 - 25 June 2021
- REMINDER - Put your own mask on first.
- THANKS - #syngapLOVE photos were great, check out our header image
- THANKS - DISORDER Channel - Thank you for Dad’s mention. https://www.facebook.com/rarediseasefilmfestival/videos/924558798278718
- GIVE - https://Syngap.Fund/CTR - We need to raise some money folks!
- WORK - Fundraisers are getting real, need to organize some events, email Peter@syngapresearchfund.org
- PROGRESS - Ciitizens got gift cards! Yeah, sign up now. Ciitizen.com/SYNGAP1
- STORY - ICD-10 Story of two codes: F78.A1 is our one and only code. https://syngap.fund/icd10
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