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Over 1200 families are caring for a loved one with the rare disease ”SynGAP” resulting from a variant of the SYNGAP1 gene. This 10 minute weekly podcast is for them. A quick summary of the latest news in the space. The host is Mike Graglia, co-founder & managing director of the SynGAP Research Fund. SRF is a parent-led, all volunteer public charity in the US that strives to accelerate research into treatments for SYNGAP1 so that we can help our loved ones in a timeframe that matters. Learn more at https://www.syngapresearchfund.org/
Episodes
Friday May 21, 2021
Friday May 21, 2021
SYNGAP10 - Episode 11 - May 21st, 2021 - We must be hopeful - and it makes sense to be so.
- Understand where science is today with Erik, https://podcasts.apple.com/us/podcast/rarecast/id954082143?i=1000519319382
- Kyle’s tweet: Fundraising raises awareness. https://twitter.com/kyleabryant/status/1394413673016446981
- Effie’s Once Upon a Gene episode: It’s Ok that your not OK https://effieparks.com/podcast/episode-080-megan-devine
- My birthday fundraiser: https://www.facebook.com/donate/465934367824427/4350219688321412/
- List of things you can do for SRF: https://Syngap.fund/clicks
- Remember especially to tell us about the doctors you have seen via https://Syngap.Fund/docs
- https://SyngapResearchFund.org
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