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Over 1200 families are caring for a loved one with the rare disease ”SynGAP” resulting from a variant of the SYNGAP1 gene. This 10 minute weekly podcast is for them. A quick summary of the latest news in the space. The host is Mike Graglia, co-founder & managing director of the SynGAP Research Fund. SRF is a parent-led, all volunteer public charity in the US that strives to accelerate research into treatments for SYNGAP1 so that we can help our loved ones in a timeframe that matters. Learn more at https://www.syngapresearchfund.org/
Episodes
Friday Apr 23, 2021
Friday Apr 23, 2021
#Syngap10 - Episode 7 - 23 April 2021
- We have raised $104k, so far! Look for the #sprint4syngap tomorrow!
- Thanks to Henry Anderson of the Pats for a shoutout!
The fund will go to an upcoming grant at BCH
- EEG Biomarker work
- Analysis of Ciitizen data into a study
Ciitizen either sign up ciitizen.com/SYNGAP1 or join the survey syngap.fund/ST
We had meetings with CB, PMC, ELCC & REN this week.
Help SRF by going to syngap.fund/clicks and tell us about your syngap.fund/docs
Reach out to us if you want to Volunteer at SyngapResearchFund.org
We had meetings with CB, PMC, ELCC & REN this week.
Help SRF by going to syngap.fund/clicks and tell us about your syngap.fund/docs
Reach out to us if you want to Volunteer at SyngapResearchFund.org
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