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Over 1200 families are caring for a loved one with the rare disease ”SynGAP” resulting from a variant of the SYNGAP1 gene. This 10 minute weekly podcast is for them. A quick summary of the latest news in the space. The host is Mike Graglia, co-founder & managing director of the SynGAP Research Fund. SRF is a parent-led, all volunteer public charity in the US that strives to accelerate research into treatments for SYNGAP1 so that we can help our loved ones in a timeframe that matters. Learn more at https://www.syngapresearchfund.org/
Episodes
Friday Apr 02, 2021
Friday Apr 02, 2021
SYNGAP10, episode 4, 2 April 2021 starts with incredible news about a forthcoming study.
- Ciitizen survey pre-trial is signed! Coming soon, look for an email. If you have not joined, ciitizen.com/SYNGAP1
- #SyngapCensus = 762
- Caren movie is up - great work on subtitles
- This week alone - 2 companies, 2 labs, 1 wed warrior Kyle from ohio, 15 - One amazing Webinar
- #Sprint4Syngap - We are doing well.
- Newsletter - Board announcement. Need some volunteers to write the newsletter!
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