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Over 1200 families are caring for a loved one with the rare disease ”SynGAP” resulting from a variant of the SYNGAP1 gene. This 10 minute weekly podcast is for them. A quick summary of the latest news in the space. The host is Mike Graglia, co-founder & managing director of the SynGAP Research Fund. SRF is a parent-led, all volunteer public charity in the US that strives to accelerate research into treatments for SYNGAP1 so that we can help our loved ones in a timeframe that matters. Learn more at https://www.syngapresearchfund.org/
Episodes
Friday Mar 19, 2021
Friday Mar 19, 2021
- Check out the Eat. Sleep. Cure. Mug, love it!
- #Sprint4Syngap is going well, thanks to leading families and teams.
- Lots of webinars coming soon, don't miss next week with Jo syngap.fund/teendx
- Sign up for Ciitizen.com/SYNGAP1
- Cell lines and biobanks.
- E4 sensors to researchers!
- CNF profiles our support group.
- Getting the next board together.
- Praxis earnings call
- Wahoodatt Fishing is awesome, check them out! https://wahoodatfishing.com/
- SRF joins the American Brain Coalition.
All in 10 minutes!
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