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Over 1200 families are caring for a loved one with the rare disease ”SynGAP” resulting from a variant of the SYNGAP1 gene. This 10 minute weekly podcast is for them. A quick summary of the latest news in the space. The host is Mike Graglia, co-founder & managing director of the SynGAP Research Fund. SRF is a parent-led, all volunteer public charity in the US that strives to accelerate research into treatments for SYNGAP1 so that we can help our loved ones in a timeframe that matters. Learn more at https://www.syngapresearchfund.org/
Episodes
Friday Jul 16, 2021
Friday Jul 16, 2021
-Working with Duke on the ORCA, let us know about your SYNGAPian here https://syngap.fund/comms
-Ciitizen, we are in the 3rd cohort, sign up quick: https://ciitizen.com/SYNGAP1
-Still fundraising for https://syngap.fund/ctr
-All social media is now on @cureSYNGAP1
-https://Facebook.com/cureSYNGAP1
-https://Twitter.com/cureSYNGAP1
-https://Linkedin.com/company/curesyngap1
-https://Instagram.com/curesyngap1
-https://Tiktok.com/@curesyngap1
-https://YouTube.com/c/@cureSYNGAP1
-Yep, we said it, and we mean it.
-Subscribe to this podcast at https://syngap.fund/10
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