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Over 1200 families are caring for a loved one with the rare disease ”SynGAP” resulting from a variant of the SYNGAP1 gene. This 10 minute weekly podcast is for them. A quick summary of the latest news in the space. The host is Mike Graglia, co-founder & managing director of the SynGAP Research Fund. SRF is a parent-led, all volunteer public charity in the US that strives to accelerate research into treatments for SYNGAP1 so that we can help our loved ones in a timeframe that matters. Learn more at https://www.syngapresearchfund.org/
Episodes
Friday Nov 26, 2021
Friday Nov 26, 2021
Support SRF this GivingTuesday! With guest host, Caitlin Kaspar, Syngap sibling, nonprofit professional
- Getting diagnosed with Syngap1 as an adult
- It’s a fact; nonprofits have overhead
- SRF founders cover all overhead! www.syngapresearchfund.org/post/7-reasons-smartdonors-fight-syngap1-via-srf
- SRF is all about transparency syngap.fund/finance
- SRF has 600K out in grants in 2021 syngap.fund/grants
- End of Year Giving
- Shop and donate at Amazon Smile bit.ly/SRF_Smile
- GivingTuesday Nov 30 syngap.fund/gt21
- End of year giving letter created for families to share syngap.fund/eoy
Episode 37 - November 26th, 2021
https://www.syngapresearchfund.org/syngap10-podcast
#overhead #ciitizen #givingtuesday #adultswithdisabilities #leadership #GlobalGenes #minted #Syngap #epilepsy #autism #intellectualdisability #id #raredisease #epilepsyawareness #autismawareness #rarediseaseresearch #SynGAPResearchFund #CareAboutRare #PatientAdvocacy #GCchat #Neurology #Genetics
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