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Over 1200 families are caring for a loved one with the rare disease ”SynGAP” resulting from a variant of the SYNGAP1 gene. This 10 minute weekly podcast is for them. A quick summary of the latest news in the space. The host is Mike Graglia, co-founder & managing director of the SynGAP Research Fund. SRF is a parent-led, all volunteer public charity in the US that strives to accelerate research into treatments for SYNGAP1 so that we can help our loved ones in a timeframe that matters. Learn more at https://www.syngapresearchfund.org/
Episodes
Friday Nov 12, 2021
Friday Nov 12, 2021
Episode 35 of #Syngap10 - November 12th, 2021
HOLIDAY GIFTS - GET SRF #MERCH
5 days left to order Hoodies, T-shirts, other gear:
- https://syngap.fund/LHC or https://syngap.fund/BKC
- Get your holiday cards at Minted.com and use code FUNDRAISESYNGAP
FOUR STUDIES are enrolling now/soon:
- Dr. Andrade - Watch the video and let us know if you have an adult who would like to participate. https://youtu.be/WyhRDePe0Jc
- Dr. Frazier - Reach out to info@syngapresearchfund.org to participate. Here is the webinar. https://www.syngapresearchfund.org/webinars/improving-the-assessment-of-syngap1-by-creating-online-measures-for-parents-and-patients
- ORCA - Once we get the greenlight from FDA we will start recruiting. Here is a link with more info: https://www.syngapresearchfund.org/post/combinedbrain-duke-university-team-up-to-receive-a-prestigious-fda-grant
- We have less than 20 spots left in this cohort of Ciitizen, sign up in the next 10 days: https://Ciitizen.com/SYNGAP1
CRYPTO
- Jack Shi interview on
https://twitter.com/cureSYNGAP1/status/1459165110862168066?s=20
https://www.linkedin.com/feed/update/urn:li:activity:6864944054384279552
https://www.facebook.com/cureSYNGAP1/posts/910882546460875
- Donate Crypto to SRF https://syngap.fund/block
HELP US RAISE FUNDS FOR SYNGAP
- Facebook Fundraisers: http://syngap.fund/FBFun
- Giving Tuesday Fundraiser: https://syngap.fund/gt21
- What is SYNGAP1? https://www.syngapresearchfund.org/home/what-is-syngap1
- Sign up for this 10 minute #podcast #SYNGAP10 here https://syngap.fund/10
#NFTs #crypto #unlockdefi #Bonfire #minted #Syngap #epilepsy #autism #intellectualdisability #id #raredisease #epilepsyawareness #autismawareness #rarediseaseresearch #SynGAPResearchFund #CareAboutRare #PatientAdvocacy #GCchat #Neurology #Genetics
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