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Over 1200 families are caring for a loved one with the rare disease āSynGAPā resulting from a variant of the SYNGAP1 gene. This 10 minute weekly podcast is for them. A quick summary of the latest news in the space. The host is Mike Graglia, co-founder & managing director of the SynGAP Research Fund. SRF is a parent-led, all volunteer public charity in the US that strives to accelerate research into treatments for SYNGAP1 so that we can help our loved ones in a timeframe that matters. Learn more at https://www.syngapresearchfund.org/
Episodes
Sunday Sep 17, 2023
Sunday Sep 17, 2023
Katrien Deckers reflects on European šŖšŗ Epilepsy Conference - #S10e115 (Volume up)
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Katrien: https://www.syngapresearchfund.org/team/katrien-deckers-chairpersonĀ
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Dr. Eschermann's SlidesĀ https://www.patre.info/2023/09/04/presentation-at-iec-2023/
EURAS Project Press Release https://euras-project.eu/
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Register for the SRF Conference, itās going to be fabulous.
- Registration link: https://Syngap.Fund/OrlandoĀ Ā
Ā - Hotels ASAP: https://Syngap.Fund/2023hotelĀ Ā
Ā - Merch https://www.bonfire.com/srf-syngap1-conference-2023/Ā
Volunteer with SRF!
Ā - https://www.syngapresearchfund.org/volunteer-with-syngap-research-fund
This is a podcast: subscribe to and rate this 10 minute #podcast #SYNGAP10
- https://www.syngapresearchfund.org/syngap10-podcast
Apple podcasts:Ā
- https://podcasts.apple.com/us/podcast/syngap10-weekly-10-minute-updates-on-syngap1-video/id1560389818
Episode 115 of #Syngap10 - September 17, 2023
#epilepsy #autism #intellectualdisability #id #anxiety #raredisease #epilepsyawareness #autismawareness #rarediseaseresearch #SynGAPResearchFund #CareAboutRare #PatientAdvocacy #GCchat #Neurology #GeneChat
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