CURE SYNGAP1 PODCAST aka SYNGAP10

https://feed.podbean.com/syngap10/feed.xml

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Over 1,600 families are caring for a loved one with the rare disease ”SynGAP” resulting from a variant of the SYNGAP1 gene. This weekly podcast is for them. -A quick summary of the latest news in the space. The host is Mike Graglia, co-founder & managing director of CURE SYNGAP1. CURE SYNGAP1 is a parent-led public charity in the US that strives to accelerate research into treatments for SYNGAP1 so that we can help our loved ones in a timeframe that matters. Learn more at https://cureSYNGAP1.org

Episodes

Friday Nov 19, 2021

Grateful for the incredible SRF team/family...

Friday Nov 19, 2021

Top 5:

10 to go! https://syngap.fund/NHS or https://www.ciitizen.com/syngap1/
https://syngap.fund/gt21
https://syngap.fund/rt3
Studies:
ORCA - Full
FRAZIER - email Corey@syngapresearchfund.org
SIGN UP ALL ONLINE https://syngap.fund/adults and email Lauren@syngapresearchfund.org

Old Guard:

Aaron, Olga, Rebecca,
Virginie, Hans https://www.syngapresearchfund.org/post/meet-the-globalvillage-of-syngapleaders by Jo!
Marta, Vicky, Peter, Kali, Summer
Pavel, Nancy, Sydney
Tavillas
Lauren Perry

New wave of leaders:

Alexis https://syngap.fund/naya
Corey Baysden
Jen & Dan Robert
Suzanne Jones
Caitlin Kasper
Ashley Frye

GET YOUR CARDS! Minted.com FUNDRAISESYNGAP

Episode 36 - November 19th, 2021
https://www.syngapresearchfund.org/syngap10-podcast

#grateful #studies #ciitizen #givingtuesday #SynapseRT #adultswithdisabilities #leadership #careaboutrare #GlobalGenes #minted #Syngap #epilepsy #autism #intellectualdisability #id #raredisease #epilepsyawareness #autismawareness #rarediseaseresearch #SynGAPResearchFund #CareAboutRare #PatientAdvocacy #GCchat #Neurology #Genetics

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