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Over 1200 families are caring for a loved one with the rare disease ”SynGAP” resulting from a variant of the SYNGAP1 gene. This 10 minute weekly podcast is for them. A quick summary of the latest news in the space. The host is Mike Graglia, co-founder & managing director of the SynGAP Research Fund. SRF is a parent-led, all volunteer public charity in the US that strives to accelerate research into treatments for SYNGAP1 so that we can help our loved ones in a timeframe that matters. Learn more at https://www.syngapresearchfund.org/
Episodes
Wednesday May 03, 2023
Wednesday May 03, 2023
Grand Total: $241,359 – Incredible! Congratulations to all the teams.
In-Person Events:
Team Tavilla raised $162,464…and counting
Hope for Hadley raised $10,059… and counting
Team Syngap America Latina raised over $2,000
Canada - Team Mya raised over $2800 & Team Chase raised over $2300
Team Andrew raised over $3,200
Team Emma Mae raised over $3,000
Team Kai raised over $2,600
Team Gracyn raised $1,864
Team Naya raised $1,795
Team Patrick raised $1,240
Kilometers4Kai raised $952
March4McKaela raised $550
Online Fundraisers:
Phoebe’s fight’s total is $32,269
Team Rocco 10,698
Team Fallyn total 1402
Team Saydee total 1123
Sprinting for Laila up in Canada raised $1029
Misko’s family in the Czech Republic is at $850
Team Teddy raised $600
Hope for Reef raised $553
Team Lizzy at $100
Rifton Giveaway
Congrats to Andrew who won the customize Rifton bike!
Sprint4Syngap 2024
Saturday, April 27
There is so much work to do, volunteer Info@SyngapResearchFund.org
This is a podcast: subscribe to and rate this 10 minute #podcast #SYNGAP10 here
- https://www.syngapresearchfund.org/syngap10-podcast
Apple podcasts:
Episode 103 of #Syngap10 - May 3, 2023 #Sprint4Syngap
#fundraising #epilepsy #autism #intellectualdisability #id #anxiety #raredisease #epilepsyawareness #autismawareness #rarediseaseresearch #SynGAPResearchFund #CareAboutRare #PatientAdvocacy #GCchat #Neurology #GeneChat
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